Posted in Uncategorized

What is There to Say

CONTENT WARNING: This post deals with the horrific events this week in Texas and Buffalo. It’s raw and does contain significant imagery that I imagine others will also find disturbing; I certainly do. Even if you are a fan of this blog, please, everyone, feel free to *not* continue to read this.

I didn’t think I’d be writing that night. I’d had a migraine, bad enough that I had to leave work before I was unable to drive. I was feeling better, if a little off from the medicine, when I happened to check the news section on Facebook after getting home from picking Lucy up. 

Fourteen kids, one teacher, at elementary school in Uvalde, Texas. That number would only increase until nineteen children and two teachers were known to lay dead in a classroom. 

Last week, it was eleven people, grocery shopping, Buffalo, NY; because by a shooter who hated black people. Then four more, church parishioners in Laguna Woods, California, because by a shooter who hated Taiwanese people. Hatred or not, I cannot fathom that violent of a response.

Who could hate young kids so much? 

I have a memory of talking to Clark (on one of his good days) and Hawthorne; Clark had made this point before, I knew. He was talking about terrorism, you know, your general light dinner table discussion. He said that the enemy would never win with the large scale attacks like 9/11; America was more unified than ever on 9/12/2001, after all. No, he said, it would be small attacks; “soft targets,” he called them. Supermarkets and movie theaters, malls and sporting events. And this was back in 2011. He was saying this before Sandy Hook, before the Boston Marathon, before Charlestown and West Webster and El Paso and Las Vegas and Orlando and the rest of the mind- and heart-numbing list. Attacking innocent people here, there, who were just going about their daily lives would sow fear into the social fabric of America. Not for the first time, today those sentiments haunt me. 

I wonder if he would be surprised at how many more mass shootings there have been since he died. Or how little has been done to prevent them. Or how Americans have responded to the pandemic. Probably not, I figure; he had his health problems, but never was afflicted by optimism much.

Clark didn’t live to feel Oscar kick, or see Hawthorne discover and settle into themself, or hear Lucy’s ridiculous giggle. He missed those joys. Yet I find myself grateful that, as with my own parents, he also missed the entire Trump presidency, the pandemic, and the death of his firstborn. He didn’t have to know that pain. 

Hawthorne had been so immediately and deeply affected by the death of RBG, mere hours before their own. It broke my heart that we spent our last night together with that tension between us. Three and a half months later, I was grateful that they did not know of the attack on the Capitol; they would have been terrified. They already lived with so much fear – of violence, of death, of losing their rights. We used to laugh about their “prepper” ways, the supply of canned goods and campstoves, the tote filled with space blankets and lighters, gallons of potable and non-potable water and container of bleach, “8 drops/gal” scribbled on the white bottle. They weren’t jokes so much as a dark-humor attempt to bring levity to Hawthorne’s real, deep-seated fear that we would one day have to suddenly fend for ourselves.

It was this mentality that had Hawthorne demanding that, if we were to have a gun in the house, I needed to know how to use it. Clark had recommended a particular rifle, and that’s what Hawthorne wanted. A couple days after filling out the paperwork, we stood in the yard of the local instructor. I cried as I loaded, racked, and shot twice. I hated the cold, heavy feel in my hands, weighing on my heart. It didn’t matter that I had managed to hit the broad side of the hill that served as the target. My soul hurt worse than my shoulder as I left Hawthorne and the instructor to their apparent enjoyment of handling this weapon. I told Hawthorne on the way home that, even knowing how to use it as intended, I was far more likely to swing to hit someone with it. I didn’t think I could ever pull that trigger.

I do not understand the appeal of guns, for any reason – for hunting or sport or protection. I have seen firsthand the damage they do to the human body; I’ve staunched the blood and bandaged the wounds on the living, and closed the glassy eyes of the dead. The headlines in Uvalde, the closeness of the community where I lived for seven years in Buffalo; all the details I try to avoid haunt me. They needed DNA samples to identify some of the children. I’ve seen the wreckage bullets leave in the flesh of grown men; I can’t stop thinking about what they would do to a child. I look at my own child, and she does not understand why I am silently weeping, but pats the tears on my face anyway. My two-and-a-half year old tells me, “Mama, it’s okay, it’s okay, Mama, good Mama.” She’s far too young to understand that some things won’t ever be OK.

I don’t want to send her to school in a few years. I barely want to send her to daycare now. It’s not like I feel like she’s any safer with me, these days; I definitely thought twice about grocery shopping this week. How quickly could I get out? Where are the other exits? Maybe I should just do Instacart. Is that putting someone else in danger, someone else’s kid or parent that could be taken away? Am I willing to put my life on the line to assuage this theoretical guilt in what should be an impossible scenario? 

Is your belief in the Second Amendment, that you have the right to bear arms and fancy yourself a vital member of a “well regulated militia,” stronger than any other single person’s right to buy their fucking groceries? Sit in a goddamn classroom? If your answer is “but my freedom!” then you go take your hard-earned “IN GOD WE TRUST” freedom and just buy yourself a bigger dick at the local Amazing and wave that around instead. Bet they’ve got bullets, too. 

No disrespect to Brian Bilston, America is not a gun. It is the blood-stained money that passes over glass counters into the hands of men, men who profit in the wakes of innocents, who mumble “thoughts and prayers” like it’s their get-out-of-hell-free card. 

If admitting that I am scared means “the enemy has won,” whichever enemy that happens to be today, so be it. Just stop killing our kids, our families, our elders, our lovers. I, like so many, really believed that things would change after Sandy Hook. And instead of those twenty kids getting ready for junior prom, and those teachers getting ready to wrap up another pandemic school year, they are nearly ten years gone, and we are again in mourning. This time, the rage feels helpless. There is no unity, no banding together of what felt like the whole country the day after the towers fell. I have more faith that once again, the gun rights activists – especially now, in what I wish we could call a post-Trump era – will make sure to line the pockets of enough of those government influencers, the politicians, so that nothing changes; I am more certain of that than I am of my own relative safety while running errands anymore. 

There’s no silver lining; there’s no coming back from this. The incidents in Buffalo and Uvalde blend in my mind until they are nearly indistinguishable in the well of collective grief. This is not the world I want to raise my daughter in. If she chooses to go into battle, I want her to be old enough to make that decision logically, and be aware of the consequences; not when she’s learning what a goddamn preposition is. If she’s going to face death, I want her to have lived more than a scant few years. Instead, I’m going to send her into a brick building that may have a door left unlocked, to be protected by someone who is vastly underpaid and undervalued, and never asked for this shit. I’m not okay with this; but this is the world we live in now, where hope is school child, playing dead among the bodies, still in the line of fire. 

Posted in Beliefs and Practices

Blessed Be the Fruits

“Why aren’t you crying? I mean, are you even upset? Do you understand what this means?”

This was the start of the argument Hawthorne and I had the night before they died. I had just told them that RBG had passed away, and they immediately became distraught. I was sitting on the edge of the bed where they were laying. I may have had to wake them up to tell them; I don’t remember anymore. 

I sat quietly. Yes, I was upset. Yes, I understood what it meant to lose RBG, a sitting liberal justice who had championed civil rights for everyone who was not an affluent, cishet, white man. 

I was also exhausted. It was Friday night, and I was balancing working full time, doing all the driving needed, and providing the majority of care for Lucy, who was just ten months old. I reminded Hawthorne, too, that I was not the type to get emotional right away. It would hit me later, I said. This did not satisfy my wife, who was absolutely distraught. 

“They’ll kill me,” they said. “There’s nothing to stop them now.” 

I thought back to election night 2016, how awful yet different it had been. Watching the results start to roll in, 1, 2% at a time, we had snacked and gotten slowly drunk on bourbon. It was before Lucy, before Oscar. We had recently lost Clark, Hawthorne’s father, and remarked about how in a lot of ways, we were glad that those who had gone before us weren’t here to see this. I figured my mom would have been making plans to move back to Poland; Clark, were he healthy, probably headed for Canada. It had already been ten years since we lost my dad. 

Hawthorne and I had felt a lot closer. We were standing on more equal ground; both of us working; school and family plans had yet to steal attention away from each other. We talked about how we were in the best place for this eventuality to happen; Vermont would not be taken over by Trumpers. Sold to Canada, perhaps, but that was OK. We joked that maybe we could ask them politely to annex us sooner.

We knew this was more than an election; this was a regime, with a long-range agenda and the weaponry and war chest to carry it out. Obama’s Supreme Court pick had already been stymied, and the court sat at 8. We knew Trump would cater to his base, after all, he had claimed to be Christian, and the evangelicals ate that shit up and asked for seconds. As long as he was getting the kind of attention the Republican party and lobbyists were willing to lavish on him, he’d do their bidding. That included seeding the courts with anti-choice judges, and cherry-picking the perfect “moderate” justices. 

Over the next few weeks, we heard (as many of our progressive, queer, trans, and myriad of “othered” friends did as well) that it would be okay. We were overreacting. The US government had checks and balances, Trump wouldn’t be king, after all. The courts and Congress would balance things out. 

Right. 

Now here we were, four years later. We had been through the wringer. Hawthorne had come out, changed their name, their pronouns, and their body to match and reveal their true self. It was a journey that even they weren’t sure where it would lead – though we had never dreamed it would be so abruptly interrupted. 

Hawthorne was scared of what would happen; Trump had already put Neil Gorsuch and Brett Kavanaugh on the bench. Ginsberg’s breath had barely left her body before the Republicans turned a wild and greedy eye on the vacancy. Their strategy had worked, and their chance had come.

I knew Hawthorne was terrified, and I understood. We had so much to lose, so much that had been decided in just the past ten years that made our family possible, and safe – and even that felt tenuous. I was upset, but not scared yet. I didn’t have the energy to be scared. I was still processing the loss of life; death has affected me much differently since losing Oscar, and I couldn’t tear my thoughts away from Ginsberg herself to focus on what was so disturbing my wife. I could only take care of the baby, tidy up a little bit, and try to get Hawthorne to calm down enough to get some sleep. 

Hawthorne had put the message out on Facebook, needing to talk to someone who was similarly emotional; I watched as they stepped outside to pace the porch and smoke while I cleaned up the kitchen and took care of Lucy. I could hear their voice rise and break at times, the deeper timbre still relatively new. They spent an hour in the cool September night out there, talking to their cousin. When they came in, they demanded to know if I had even cried yet. I hadn’t.

They died before I shed a single tear for the Notorious RBG; after that, all my tears fell for them.  

In the days since the Supreme Court leak of Alito’s draft opinion, I have thought of that last night more often that I feel like I have since their death. I have been so angry; the kind of hot, pulsing anger I keep thinking I’m done with. I’ve had more memories surface this week, none of them happy. I understand that with the traumatic events that are happening in the world it’s only natural that it would stir the painful memories first. Still, I am frustrated that it feels like the best memories still lay beyond my reach. 

I cannot help but see beyond the potential fall of Roe v Wade, however. I see this as the first in a long series of dominoes that would put my humanity, the rights associated with that humanity, back in the hands of the state courts. And yes; I live in Massachusetts, have always lived in the Northeast, and have much less to fear than most. I would be safe; my family and local friends would be, too. 

I don’t want to go back to a time where we had to wonder if we were safe – if we would be considered married still, over state lines. If Hawthorne had ended up in the hospital somewhere out of state, how would they be treated? That was somewhat of a concern, even here in New England. Bigotry and hatred don’t care about state lines or laws; they just don’t man the political wheel where we have lived. 

If Roe falls, it is only a matter of time before marriage equality – as far back as Loving v. Virginia, I fear – are back up for debate. I am utterly incensed with the court’s apparent willingness to undermine the autonomy of half the country. In a country with some of the worst maternal health statistics in the developed world, they want to force more people into risking their lives in being pregnant and giving birth. 

There has been nothing in my life that has made me more pro-choice than my experiences with pregnancy and birth. I did not recognize how endangered my life was, when my blood pressure began to rise and rise. I did realize how uncomfortable and painful things could be; how my kidneys could start emitting blood and shards of calcification, how my gallbladder could fill will sludge, how my placenta could trick my body into changing insulin production. Being pregnant is a (at times hostile) takeover of one’s body and lifeforce in the creation of another, which may or may not be healthy enough, or lucky enough, to survive the ordeal. 

I have carried my two babies, not easily. Both pregnancies were celebrated, and both were difficult. One ended when my body turned on me even more, and Lucy had to be welcomed six weeks early. The other ended with an aberrant twist of the very cord that gave my baby his life. I delivered my son, already dead, at more than a week older than my daughter at her birth. 

I would never wish that on another. I would never wish pregnancy on someone who did not want it. And I would certainly never wish anyone to be forced to go through what I have. 

There is a march today, in cities all over the country. I was prepared to go, thinking of bringing my daughter, but ended up securing a babysitter since I simply do not have the energy to wrangle a toddler in the heat and press of bodies. Either way, the plans did not come to fruition; mission aborted, as it were. It’s a hard decision. There is a part of me that still wants to find a way to go – because I believe in activism, and this is a cause that calls for action. However, most of the reason I wanted to go specifically today, goes back to that night where I never cried for RBG. And while she played a role in the events leading to today, it is the memory of Hawthorne that makes me feel most like I should go. I have to remind myself (with the assistance of beautiful friends) that I do not have obligations to dead people. Not to RBG, not to Hawthorne. 

Maybe that seems cold and unfeeling. Maybe you don’t feel the same about doing things that “they would have wanted,” whoever “they” is for you. I promise you, there is a tumult of emotions every time I think about what Hawthorne “would have wanted.” That is a storm I am very familiar with, and will continue to go through. Yet I have come to a place in my life, as a person, as a mother and friend and widow and everything I am, where I am living this life for me. Not for RBG, not for Hawthorne, not even for Oscar. My life. My body. My choice. 

To everyone marching today – your reasons are your own, your journey is your own. I raise my glass (mmm coffee) to each and every one of you; know that I am with you in spirit if not in sneakers. To everyone Roe v. Wade has affected – my heart is with you today, as well. You always have a safe space with me. To everyone worried about what this will mean for them, now and in the future – I’m with you, too. 

And to anyone who wants to deny people their autonomy on the grounds of “morality,” politics, or religion; anyone who wants to roll back civil rights for folks who have had to fight for every inch of them; anyone who wants to bring back any measures of discrimination – let me make it absolutely clear that I am not with you. 

It’s a lovely May day, don’t you think?

Posted in Uncategorized

I Know How to Love Me

It amazes me, the way our brains can handle two lines of thought separately, and seem to deliberately keep them that way. I’ve been very cognizant that it’s my birthday; and also, wondering why this week has felt difficult and I’ve had so much trouble focusing. 

I’ve had a hard time celebrating my birthday since Oscar was born, and after losing Hawthorne, I just don’t see the point. This year is an improvement over the past few; I’m able to say it without crying, and I haven’t spent the week leading up to it in absolute despair. This year, it’s a little closer to just another day on the calendar, and a little further from being a reminder of the ones I love most who don’t get them anymore. 

Hawthorne was the birthday celebrator. They’d wheedle me into taking time off from work to celebrate, to go do something fun, have a fancy dinner or dessert. They grew up in a family where birthdays were important and special. 

In my family, things were much more muted. We would go to a nice dinner, something would arrive with a candle, and that was pretty much it. The effort went into the kids parties: what to do, how many guests, how many conversations to watch my sugar or chocolate intake. As a parent now, I’m already exhausted by the thought of Lucy’s school-age birthday parties. I don’t blame my parents for keeping our own celebrations more subdued.

For Hawthorne’s 36th birthday, we went all the way up to Burlington with a friend to see the movie Midsommer. I felt utterly traumatized; I could hardly acknowledge the aesthetic beauty of the film, and certainly had no interest in analyzing it. I just wanted to get as far away from it as possible. I’m sure now that this is because I was 5 months pregnant at the time, and far more sensitive than usual to certain types of horror. I cried the whole way home, my fingernails digging into my arms as I tried to hold back the outright sobs. I may have been distraught but I did not want to ruin it for Hawthorne. As it turns out, it was the last year of “normal” birthdays. 

It is now my 36th year, and I find myself thinking about the film more and more. I don’t know if I’m ready to watch it again; yet scenes play over and over in my mind. In the movie, 36 is considered the midpoint of one’s life. While I don’t feel as if I’m in the throes of a mid-life crisis, there has definitely been a shift. Coming out of the season of depression I was recently so deep in, I have made a lot of changes. I’ve started to transition my diet (at home) to more plant-based and pescatarian. I’ve started running again, and as difficult as that has been, the joy of feeling the wind on my face as I plod along could not be more incentive to keep at it. I have missed running. 

I am being more proactive about my health. With hypertension that began in my twenties, and two rounds of gestational diabetes under my belt, I understand that the risk of developing heart disease and type II diabetes are very real for me. And while I believe that people can be healthy at any size, I don’t feel like am at my optimal size or health. 

Of course, I wouldn’t be me if I wasn’t questioning myself to death over this. Both my parents died at 63. My father did everything “right:” he exercised, he ate extremely healthy, had something like 7% body fat. I mean, the man was 2 seconds off the time to qualify for the Senior Olympics in the 800 meter race. He was fit as a fiddle. And he got ALS. 

My mother wasn’t quite so well-behaved. She smoked as a teenager and young adult, as nearly everyone did then. She enjoyed her wine and her chocolate with less reserve than my dad wanted, and I remember his occasional admonishment, which she would wave off. And really, to be fair, her usual dessert was trail mix – which is just more evidence to the hard-ass my dad was about sweets. Trail mix had chocolate chips in it, and was automatically unhealthy to him. 

She had some health problems, but were seemingly well managed; then one day she had a hypertensive event, was diagnosed with a 10-day old heart attack and stage 3 cancer, and was gone just days later. 

It definitely feels like a sort of damned if you do, damned if you don’t situation. I lost my son to an umbilical cord accident, before he could even draw breath. I’ve lost family members in their eighties or nineties. And I lost my wife, my forever person, at age 37 on a normal, sunny Saturday. 

I am not afraid of death in the abstract; we have been friends for too long. I am afraid, however, of dying young. I have so much to say, and I am terrified that my time will be up before I have a chance to do that. Or, like my father, that some disease far outside my realm of possibility will steal my ability to do that. This is a fear that Oscar left me with; I need to tell my stories, and there is no telling when something will happen and abruptly end my chance. I ache for the time and space and bandwidth and energy. All of these are in short supply with a full-time job and a two-year old, and on the days I don’t quite get around to writing, the nagging fear is there to remind me that I’m going to leave things unsaid. 

The fear that Hawthorne left me with is quite different, and is currently, finally, stretched out face-down while the changing colors of the nightlight illuminate her curls. Now that spring has arrived, the days growing longer and the weather enticing us outside more, the TV is not on nearly as much, and I’m enjoying the company of my kiddo again. To watch her learn is just incredible. You can practically see the synapses dance as they find where to put each new piece of information. I don’t want to miss a moment. 

I have started the process of spelling out my end-of-life plans and wishes – my mom never had a chance to update the basic template she used, which made things difficult for my sister and I (and the wonderful people who helped us navigate that after her death); and though Hawthorne had spoken about death and what should happen “if and when,” there was no guidebook. Of course, now that Hawthorne is gone, there is Lucy to be even more worried about should something happen to me. I don’t want to see that light dimmed by anything.

And so, plans are in motion, some already in place. Bloodwork has been collected; medications and monitoring scheduled, and daily intentional movement and stillness have both increased to try to achieve some state of balance in what feels like a very busted-up body, mind, and soul. Two knees and one ankle scream at me after every installment of Couch to 5k; my abdomen is strengthening, though I feel like I have looked pregnant going on four years now. I forget how to breathe while I’m focused on breathing; as soon as I turn my attention to my form, it generally evens out.

There is nothing pretty or exciting about this; no “most improved!” award I’m aiming for. I am consciously not following the footsteps of my father, with his strive for perfection; or my mother, who would put off getting something checked out until she had time. I’m not doing this to get skinny, or look better for other people to enjoy. I don’t give a single fuck if someone at the beach on a hot day thinks I should wear something less revealing. As Janelle Monae clapped back at one tweeting moron, “Sit down. I am not for your consumption.”

I’m doing this for me, and for my daughter. I want to feel better – body, mind, and soul. I want to do things I love – eat, write, and run. I want to be around a long time; I have a lot to teach her, and a whole hell of a lot more to say. 

Posted in Uncategorized

Co-Author, Co-Conspiriter

A week off schedule, but very exciting stuff!

I mentioned one of the other writing projects I have been working on is having a chapter as a co-author of The Rising Sisterhood, book 3. We are hurtling toward publication, and the blog for my chapter was just released.

You can read it here: https://therisingsisterhoodbook.com/marjanna-barber-dubois-the-rising-sisterhood-author-book-3/

(And yes, being in book 3 implies that there are two earlier publications as well, and you should check those out too. Proceeds from 1 and 2 go to The Trevor Project and Girls, Inc.)

I will return to my regular schedule next week with another Queer Mama Rising post, but I wanted to share my excitement of collaborating with some other amazing women to create the next installment of The Rising Sisterhood. 

Now I just have to figure out all the other social media stuff that isn’t pasting a link into Facebook. 

Posted in Uncategorized

Buried in Your Bones, There’s an Ache You Can’t Ignore

I have been remiss in posting. The last time I did, I said I would take off November to focus on my first novel, and I did. I thought about jumping back in immediately in December, but instead continued the efforts toward the novel, and finished the first draft. I spent some time grinning about that, and with my writing group as cheerleaders, printed the thing. Now mind you, this is not some industrial printer; it was a gift, and intended primarily for the photographs Hawthorne was taking, mostly of flowers and birds. Ella, of course, was a favorite subject, and was happy to laze in a sunny spot while Hawthorne played with filters and settings. 

Still, it’s a printer, even if the paper comes out one slow page at a time, and there isn’t a large enough tray to hold a regular letter after it’s complete. I was giddy, watching words that I had written slowly emerge from the sleek black box. When I got too caught up, the page would flutter to the floor, only to be snatched up within seconds. The tray ran out of paper five times. I found a stack of paper dating back to at least when we got the printer, and kept feeding it in. I put the last half-inch stack in the tray, and bit my nails that it wouldn’t be enough. I had the Zoom company of friends laughing along with me. The printer stopped, about a quarter inch of paper left.

196 pages. I had written a book.

It is a wondrous feeling. I had felt similar at work before, or at school; finishing a large project, my capstone, my thesis. That had felt like validation and triumph – I was smart, I was competent, I could handle anything that was assigned to me.

This? This was entirely different. This incorrectly formatted half-ream of paper, it’s edges not quite aligned (as happens when you assemble a large deck, card by card, before you tap it out), was more than validation, more than triumph. This was pride, and wonder, and joy. Here in my hands was a cohesive story that I had pulled, part by disjointed part, out of my imagination. I had been living with some of these people in my head for months; there were a few newcomers, too, that hadn’t arrived until November. They were all here. Their stories, in sum and in part. 

Don’t ask if I cried, you know I did. Of course I did. I had accomplished something that, even six months before, had never thought I would do. I had written a novel. 

Now, it is nearing the end of March. I haven’t done a lot of writing so far since finishing the book. I did complete the drafts and edits for a chapter for The Rising Sisterhood (much more to come on this later). I have also been reading voraciously, constantly consuming other’s words: everything from Jane Eyre to queer smut to books on personal development skill building; and, for once, a novel. 

I’ve always classified the reading I do as either “books” or “romance.” I’m a huge Nora Roberts fan, and love to read anything queer and sexy I can get my hot little hands on. I don’t mean that it’s not good writing, but more than it’s almost like TV for me. It’s not super serious, I can get wrapped up in it but without stress, and I know how it will end. It’s like rewatching Parks and Rec or 30 Rock for the seventh time. Other than that, however, I don’t often reach for one of the glossy paperbacks from the best-sellers in fiction.

Some new friends loaned me The Night Circus, by Erin Morgenstern. I took it because I want to be reading more of anything, the way I used to. So when the time came to leave for my little trip, I grabbed it off my desk on my way out the door and tossed it on top of about eight other books. 

I had given myself an early birthday present – a short solo trip at the beginning of March, in a charming AirBnB in New Hampshire. I was leaving my daughter for the first time since she was in the NICU; my sister and her fiancé would stay with her until I came home three days later. I loaded up on provisions: a full cake, loaf of bread, lox and cream cheese, thirteen notebooks, all my crystals and tarot cards, computer, markers, and even the printer. I didn’t want to suddenly want to do something, and not have it with me, for what I was calling my writing retreat. I had a list of things I wanted to do – update my reading journal, cleanse my crystals, walk for miles. Mostly, though, what I needed was the space and the silence to figure out exactly what it is I want from all this writing. 

I’m currently involved in several projects – one as a coauthor on a research paper, a coauthor chapter for The Rising Sisterhood, the Patreon I wanted to launch, the novel I was working on, this blog; and any number of jotted ideas and quick lines of poetry. I hadn’t been writing a lot not only because I was in revision mode, but because I couldn’t determine where I wanted to focus all this creative energy. I had figured out by the winter solstice that I needed clarity on this, and scheduled this trip into the mountains. 

When I got there and settled in, I went into “town,” picked up a large pizza and two six-packs; far more than I expected to drink, but it would be great to take some home and savor for the spring. After that, other than long walks on mountain roads, I didn’t leave the house until I was checking out to go home. I texted a couple folks, but other than a co-author call, spoke to no one for the duration of my stay. 

I treasured the peace, and made the most out of my time away. At first, I wasn’t getting the answers I wanted; by my first sunrise there, I was wondering if I had made a mistake, if this had been a bad idea, or if I just wasn’t ready to treat myself like an actual writer. The trip hadn’t been the wrong step, but maybe I was putting too much pressure on myself to figure things out. So I talked out loud, filled page after page, and read like it was drawing breath. 

The first night, I read one of Cat Sebastian’s queer romances cover to cover; it was blatantly sexy and perfect for my mood, sitting by the fireplace in the wintering mountains, so cold the snow squeaked underfoot. The next morning, I picked up The Night Circus. I remember shrugging as I took it downstairs to settle in. 

I utterly devoured this book. I read it in three sittings, utterly entranced. I laughed out loud, startling myself in the cabin alone. I cried, tears dashed away so my eyes could keep clear enough to keep reading. 

Finally on my last evening there, after another writing reflection session that didn’t feel productive, I pushed back from the little table where I was set up. I grabbed the book and went to take a bath. I sank in – the tub was deep, and reminded me of a free-standing version of the one we had in Vermont. The book I couldn’t stop thinking about sat on the tray that had been made for the tub along with an ice cold beer, sweating in the small, steamy room. I don’t know if I’d even had my first sip of it yet when it dawned on me – the answer I had come to find was right in front of my face. Literally, as it turns out. 

It took two-and-a-half days of writing and reflection; over six thousand words of deep-diving into myself and questioning myself. I had to walk away and come back to it time and time again, peeling back the layers of years of feedback and feelings, of what I’ve been told I can and cannot do, if I’m using or wasting my potential. Onions are a good analogy for this sort of slogging discovery; tears burn in your eyes, the unpleasantness gets into your pores as you have to dig in to separate, and the stench lingers in your nostrils.

What do I want out of my writing? I want to write for me, and write for other people. I want this to be a career, not just a hobby. I want to share my writing as far and wide as I can get it, not because I think it’s that good (because we all know how that imposter syndrome gets sneaky), but because I have a lot of things to say and too much experience with peoples’ voices being silenced by death too early. I have stories inside of me, which is a magic all its own. I want a certain amount of success; I want people to recommend my words to their friends. I want the glossy cover, the capital NYT BESTSELLER emblazoned across the top. I don’t have to be a household name as an author, but I want my stories to be known well – most people have heard of Night Circus or The Time-Traveler’s Wife, but do you know the authors off the top of your head? Likely not (Erin Morgenstern and Audrey Niffenegger, respectively) And that sounds just about perfect. 

So from here, I am going to finish my work with The Rising Sisterhood. I’m going to pause my Patreon and some other smaller projects I’ve got in the works. I’m going to keep writing down things as they come to me, until they are ready. I’m going to focus my attention on the writing that I can share. 

The books, the novels I have inside me, I’m writing those because I need to get the stories out, and I’m writing them for other people. 

The blog is back, and staying. The value this has had for me has been incredible. I wonder if I would have had an easier winter if I’d kept it up. At the same time, however, stepping away from it gave me room to go out and explore different styles and ways and communities of writing. Coming back to writing this, on schedule, from the heart, feels like coming home. 

I write the blog because my soul needs to write, and for some things, to share. I’m not suggesting that this is someone else’s survival guide, but I know it’s read, and that’s enough for me. 

Thank you for reading, I hope you continue to. And if you need or want to step away for a while, well, the magic of the internet will make sure this is here when you want to come back. 

I am home, and ready to write with open arms. 

Posted in Uncategorized

It’s a Shame About the Weather

It’s a Shame About the Weather

I have not been shy about talking about the things I go through and experience – my mental health, stillbirth and pregnancy loss, losing my spouse, queer widowhood, sexuality and gender. These are often taboo to talk about, to write about; there’s a thin line between “enough” and “too much, I don’t want to hear this.” I try to stride down that line with my Docs on. I prefer to lead by example; if I think these topics should be destigmatized and not avoided, I’m going to write about it. The greatest reward would be to help someone else write or talk or explore what they need to.

There are also topics that are important to me that I don’t write about here. This isn’t from shame or remorse, stigma or embarrassment; some things are just private. A couple of times I’ve blurred that line, and asked the other person(s) involved if I could share the redacted story. This is, in part, in deference to the fact that I personally know many who follow this blog, and many of those are family. Oh, it still gets written; just not here. 

All that to say, my mental health has been junk lately. The early dark, the seemingly constant rain, the changing of seasons: none of these help. Depression has made its home in me again; uninvited, but not unexpected. 

I know the signs. The dwindling creativity, the defiance of self-care, the isolation all tell me I was right to be afraid of this season. I can function for about 14 hours a day; from the time I open my eyes before 5, unable to sleep longer, until Lucy is tucked into bed. After that, I shut down, as if programmed. I live in a state of exhaustion, one that is colored by that of having a toddler, grief, and depression itself. If you have never felt those last two flavors, I hope you never do; but those who have know the differences between. 

This is not a cry for help, or even a reason to worry. This is not the kind of depression where it is important to be able to ask, are you going to kill yourself? (The answer is no, anyway.) I have felt that depression before, and it is scary shit. 

This is an acknowledgment. I am depressed, and right now, that’s OK. This is a season I will get through. I’m not afraid; I don’t have scary thoughts, or thoughts I cannot control. I’m not in danger, Lucy’s not in danger. She may notice that I’m crankier and I cry a lot more, and she might watch a little more TV when my spoons are depleted before bedtime, but she still sees me laugh every day. She knows she is loved, she knows I will always pick her up when she runs to me. 

I have worked hard to gather my resources prior to the fall. My medications are stable; blessings on chemistry and SSRIs. I am on the waitlist for a counselor who seems to be an excellent match for what I need right now. I replaced my desk lamp with one used for seasonal affective disorder, and I love it. I have pulled back from social media, and I am allowing myself to only access the news of the world when I feel I can handle it. I have talked to my friends, to my family, to my doctor about it. I am open and frank about what I am experiencing. I buy little junk food and easy (I mean, easy; thank you, Wegmans) meals. I keep my routine and my bullet journal. I try to be strict about my bedtime. I have consistent plans to get me out of the house or allow people in, and I really enjoy my job. 

Someone asked me last week if they did something to upset me; another asked if something had happened. Both answers were no. This is just how it is, sometimes. And right now, sitting and writing with my sun lamp in the dawn of a new day, it’s easy for me to remember that this, too, will pass. This is a season, one I prepared for. 

I am depressed. I have chronic depression, and seasonal affective disorder. I have general anxiety, and symptoms of PTSD and agoraphobia at times. 

I am depressed, and I am OK.

For you creative types out there, I know you understand this next thing – when you start a new piece, in whatever your medium is, and it just takes off on you? You know what I’m talking about. That’s happening right now, real time. Front row seats for all.

I hadn’t intended to talk about mental health, mine in particular, like this. I had intended this post to be short and to-the-point. I wanted to tell my readership (and let’s be honest, anyone who will listen) that National Novel Writing Month begins on Monday, November 1st. I will not be keeping my schedule of biweekly posts to this blog for November, as I am concentrating my writing efforts elsewhere. I have a lofty goal to hit, and a lot to say. The blog will resume in December. Thanks for sticking around!

NOTE: if you are depressed and considering killing yourself, please check out these resources. It might not feel like it right now, but there are people out there who truly care. You will get through this. It gets better. 

(International) http://www.suicide.org/international-suicide-hotlines.html

(US) https://suicidepreventionlifeline.org

Posted in Uncategorized

It’s the Ghost of Love That’s Made You Such a Mess

We talk so cavalierly about love and death. Flip on the country station for a while and listen; for that matter, the pop station, or anywhere you’ll hear (usually) a man professing how he cannot or will not or does not want to live without the love of this woman (again, usually). There is no pause in the lyrics, nothing to actually address the mortality, and I fully understand that it is a turn of phrase. To profess that you would rather die than live without, that you don’t want to even breathe without, is to walk with a privilege forgotten by those who have lived with loss. To announce that there is no way, even in the romanticism of song lyrics, that life could possibly continue after the death of your beloved, is blind arrogance. 

When we married, Hawthorne carefully curated the list of approved songs to make sure there was no mention of death in the lyrics. We didn’t mention it in our vows; the closest we came was using an instrumental of “The Luckiest,” which has a verse about an old couple who passes away within days of each other. Even then, we both were too well acquainted with death; had felt that cold hand rest on ours as we tried to pump life back into a still heart, had lost enough of our own to not be intimately aware of our own mortality. We refused to invite death to our wedding. 

And yet, it found us in our marriage, time and time again. I think I’ve thought about the movies of the Final Destination series more in the past year than I have ever before. Logically, I know that death touches everyone; and in pandemic times, even more so. I get that. It doesn’t mean I’m OK with it, or that I can easily accept it, or that it changes the individual losses experienced by each person. 

I’ve been talking a lot about the difference between seeing patients and population health at work recently. I am privileged enough to work with a group of great providers and staff who care about their patients. In my position, however, it’s integral that I see both the forest and the trees. It’s harder for the folks who see patients to do that; they sit for a few minutes to an hour with individual people, learning about them and what they are feeling and experiencing. I’m grateful that I know what that is like from my paramedic days, that I have that background to draw from. 

But I am also trusted to remember the fact that we are serving both individuals, and a population. From that 30,000 foot view, it is not the individual that we are caring for: it’s the subset of people who have breast tissue and need mammograms, it’s those who have high blood pressure and diabetes, it’s kiddos under the age of two who need their vaccines. In that thinking, the individual is not the concern, it’s the group. I realize that sounds callous, but both views are absolutely necessary. 

The fact that I have lost so many in my time and in my family means nothing in the grand scheme of life and death in this world. How many people, lives, relatives, humans died in the past week due to disasters or the pandemic? Over 600,000 have died directly from Covid-19 or its immediate complications, to say nothing of those who have perished due to more ancillary complications: not being able to get a hospital bed for another condition, not having access to the social services that helped keep them alive. It is a heavy thing to know the weight of the forest as you watch individual trees be felled.

I am still standing. 

That’s not a brag, or even a point of pride here. It’s just fact. I have lost, our families have lost; we are all tired of watching Death come for our own. 

There are moments where I have absolutely wanted to give up and lay down, let my body be consumed by earth or fire or water, and join my son and my beloved in the stars. I have no shame in admitting that. 

And so the songs go:

I don’t want to live without you, I don’t want to even breathe.” 

How do I breathe without you, if you ever go.” 

I could never live without your love.” 

And here I am. Living, breathing, carrying on.

Grief has torn me to pieces so small that it’s a wonder there’s enough left to be stitched back together, and makes it hard to find the needle and thread. But I’m holding on, if (at times) for no other reason than my body isn’t done with me yet.

We talk about this love, this undying emotion that is so strong it would kill us to lose our partner. We hear the songs and stories about elderly folks who pass on within days or hours of each other. We read and watch The Notebook. We talk about dying in the same moment, so we are never without. 

It doesn’t usually work like that. 

In the movie Midsommer, (possible spoiler alert, but it came out in 2019, so catch up), the couple whose “time has come” is preparing to jump to their deaths. One has accepted this, the prescribed end of his life. His wife has not. She weeps and wails, not ready, even though her love is laying below, bloody and bludgeoned and gone. I can’t tell you if she is “assisted” over the edge, because I closed my eyes. I couldn’t watch. 

“How do I live without you?” It’s hard as shit. But you do. 

“I don’t want to even breathe.” Too bad. Your body just keeps breathing, your heart keeps beating. It requires far more action to stop those things than you have the energy for. Even if you just sit there, wishing to go gently into that good night, the time passes. People urge you to eat, drink, live, and at some point it becomes easier to give in to that than fight it. Grief demands the path of least resistance. You take the road that requires the least amount of energy and effort, because you have neither to give – but you are still on that road. 

I have lost, immeasurably. And while it’s hard, I still want to live. I want to continue. Some days more than others, some hours are spent just letting the time pass and my body breathe for me; but I want to live, even without Hawthorne, without Oscar. I know that I have their love, I just don’t have them with me here. 

Sometimes when these songs come on the radio, I get angry. There’s no choice, I scream out the open window on the highway. That’s not how it works. Sometimes I cry, tears slowly rolling out of my eyes. Sometimes I just shake my head at the audacity of the songwriters to think that life stops because the body that held your love died. 

Life doesn’t stop. Time doesn’t stop. 

I have likened both Oscar’s and Hawthorne’s deaths and the days that followed to being on a train, speeding through the land. Inside the train car, everything is still; everything is how they left it, nothing is touched. There’s some change from the sway, the outside pressures of acceleration and movement and disturbances, but it’s almost like you remembered it. 

Then you look out the window and see everything rushing by, and you realize, the stillness is false. Time hasn’t stopped out there, all around you. Life continues. And at some point, you have to get back outside the train car. 

It hurts my heart to think about how many people are going through this; hundreds of thousands of people who may not have had to face it right now, were it not for the pandemic. I see the struggles my friends are facing with their family and friends. I am primed for bad news at any moment, guarded constantly. This isn’t living in fear, it’s living with reality. The forest is vast, and each tree cut down is a fresh wound to it, no matter what view you are taking. 

One artist Hawthorne and I never got to see live was Jason Isbell. I’m getting to the point where I can listen to his song “If We Were Vampires,” again, without H, but rarely without crying. And while I’m not ready to see time running out as a gift, I can at least be grateful to a songwriter who understands both the depth of love we had, and the cold, hard truths of mortality. 

Posted in Uncategorized

Last Year Was a Son of a Bitch For Nearly Everyone We Know

On the morning of the anniversary, I awoke in the dark. I was sharing a room with both Lucy and a cousin; we had just had Stan’s funeral mass, and the family was spending the weekend together. 

I have always had a hard time with anniversaries. I’m good with dates; they stick out like pins in a map, destination points on the journey. If I can just make it to the next one, then I can think about what comes after. This mindset evolved after my father died fifteen years ago. His long battle with ALS seems more like limbo now, as if life was paused on this side of the veil. He wasn’t ready to be counted as one of the dead, and yet, it was hard to exactly see how he was still one of the living. This moratorium on mortality remains nebulous, a shadowy place on the map where the same paths have been trekked so often the lines themselves are blurred. 

October 12, 2006, I got a panicked call from my mother around 6:30 in the morning that “something is wrong with your father.” I was groggy with pain, having separated my shoulder in a rugby game 5 days prior. One of my roommates helped get me into a sweater and my sling, my boyfriend and his dad came to pick me up. My mom had been unable to say it, but my father had died, finally and peacefully. Eight years after symptoms started, six years after diagnosis, and two years after losing the ability to communicate, his body let go of its tether to the machines, and he crossed over. 

The date was burned into my brain. The twelfth of every month after that was hard; I don’t think I understood it as grief necessarily. I didn’t know why I grieved; he and I had said our goodbyes long before that day. I felt as if I had done my grieving (breaking news, I hadn’t). Years went by. I became an EMT, I graduated; I made an ill-advised decision to get married, bought a house, became a paramedic, suffered through the marriage until my breaking point. 

January 5, 2012, my mother died after a sudden episode of a silent heart attack, complications from the medication, and a Stage III cancer diagnosis. She was spared the years of suffering my father endured; just over a week passed between her hospital admittance to her death. We had never mended our fences, but she squeezed my hand and smiled at me as best she could. She died comfortably, surrounded by family and friends. 

September 20, 2016. My father-out-law, Clark, died under hospice care at home, after a series of strokes that spanned close to a decade.

July 19, 2018. Oscar, my starside wild child. 

September 19, 2020. Hawthorne, the love of my life. 

Grief is the compounding interest of daring to love. There is no formula to guide you through it, no way to quantify it; there is no forewarning before she appears. She knocks silently and lets herself in, making herself comfortable. She has permanent lodging in my heart and holds the master key. 

I spent the morning of the anniversary watching dawn break over our favorite beach. I wore one of their favorite dresses and walked barefoot in the cool sand, picking up shells to make the heart. I talked to them down the first side of the beach; it’s rare to have that conversation out loud, but I needed the wind and the sea to carry the message to where they might get it. I love you, endlessly; I miss you, I’m angry, and I’m surviving. 

I took the path into the dunes and visited Oscar’s tree. I sat in silence as I watched the early sunlight brighten the branches that now stood for both of them. The colors were so vibrant; the blue of the morning sky, the deep green needles of the pitch pine, the silver of the sticky sap that exuded from the cones turning brown. Not for the first time, I thought of just how bullshit it is that they have to miss this. 

I went down the dune path and over to the leeward side of the beach. There was more chop than I had seen over here before. It’s as if the wind knew I needed to feel her as surely as the sand beneath my feet, the water a breath away. 

I knelt in the sand, weighing the bag down with my sandals as I removed the shells and rocks and flotsam I had collected. My hands shook as I began placing the natural decorations into the heart. I made dozens of adjustments to create the outline just so.

I hadn’t found a stick, and didn’t want to leave before it was finished, so I traced their names out with my finger, patting down the sand moved away from the lines and curves of the letters. My heart ached without a trace of sweetness to temper it, and the wind blew the tears from my face to rejoin the sea. When I had finished, I took my pictures, the heart half in the sun now. I sat a few minutes, steeped in grief, before slowly making my way back down the curve of beach.

When I got back to the house, we packed up the cars, did the sweep for tiny toys and phone chargers left behind, and left the rental. We made our way across the Cape to the bay side and met up with some friends for breakfast before going our separate ways.

The one other thing I really wanted to do to mark the anniversary was to visit Walden Pond, where Hawthorne had asked me to marry them. They did the whole down-on-one-knee thing; I have the picture of their sandy jeans to prove it. That afternoon, I tucked a sleepy Lucy back into her carseat and headed out again.

I was more focused on being at Walden Pond and taking a walk around than I was with silly things like directions. Turns out, there is a small pond also named Walden a mere 20 miles away from the one I was trying to get to. It was 4:30 by this point, and all I wanted to do was cry and give up. I was tired and heartsick, and Lucy was awake by now and unhappy with being in the car. Still, I plugged in the real destination, and followed a typically convoluted path through Boston and out the other side to get there. 

We arrived at 5:30 to a full parking lot that still demanded payment. I took my ticket and hauled Lucy out. I was still in my dress, with the addition of hiking boots it had become clear I would not be using, since the park closed at 6:30. Lucy was in one of my favorite new fall outfits, sparkly shoes and all. 

We started towards the entrance and I realized that I had never been here when the park was “in season.” The tears welled up as I lost hope of a quiet moment with every step.

I knew, of course, this was a pond; it had never crossed my mind that where there is a pond, and a sandy crescent of beach, that there would be swimming. My heart sank as I gave up every notion of what I thought this trip would be. My steps fell heavy as I skirted the water’s edge; the spot where I had wanted to be, where Hawthorne had asked me to be their forever, was completely across the pond. We wouldn’t be getting there today.

I was holding Lucy’s hand as we navigated the narrow strip of shore between larger sections of the beach when she tugged her hand and broke away. No longer content with the dry slope, she had noticed we were right next to her favorite thing besides trucks and dinosaurs – water. 

She stepped, shoes sparkling in the sun as she splashed just in the surf. Tiny fish darted at the disturbance, and as I crouched to point them out to her, she ran into the water up to her knees. I could do nothing but laugh. The sheer joy on her face shone brighter than the sunlight, and her laughter rang out over the water. She danced and threw herself into the water as I stood at the edge. The water was still and very shallow and full of kids, and she strayed no further than six feet from the sand, splashing and stamping her feet. The droplets that flew from her glittered like diamonds until being swallowed by the growing shadows, and I heard the announcement over a loudspeaker that the park was closing soon. 

I watched her play a few more minutes, making sure she kept close, and she made sure she got every inch of herself soaking wet. The next time she was in grabbing distance from shore, I caught her and hauled her up, dripping and screaming. I caught several looks from other adults, both parents and not, and there was more judgment than there was sympathy. I missed Vermont keenly in that moment, homesick for the mountains, and the acceptance of the wildness of kids. Fuck ‘em, I thought, as I held my chattering Lucy close. We got back to the car, I pulled off most of her wet clothes and wrapped her up in a towel for the twenty-minute ride home. When we got there I put her immediately into the tub, which she made abundantly clear was not a substitute for the pond.

As I rocked her to sleep, I thought about the day. The morning at the beach had been what I expected, wanted, and needed; the afternoon hit one out of three. Walden Pond gave me neither what I expected or wanted, but it may have given me something else I needed.

One of the biggest surprises of the day was the emotion of pride I had felt; a little at the beach, but more so, at the pond. Watching our curly-haired ray of sunshine act just like her Papa in the water was a balm I hadn’t prepared for. I have been accustomed to sitting in the grief and pain on anniversaries. I understood the craggy emotions that coalesced into mountains, and I could isolate behind them until the date passed and they crumbled away to more manageable bits again. 

Lucy doesn’t let me do that. Lucy demands to be seen, to be experienced. There’s a line in Brandi Carlile’s song The Mother that comes to me in these moments: “the first things that she took from me were selfishness and sleep.” I cannot be both selfish and present with her. What I can be, however, is proud. 

I’m proud that I’ve survived this year; I don’t mean in the life-or-death sense of survival, but mentally and emotionally. I have been active and present, and while I may have felt like it, I haven’t been consumed by grief.

I will never stop missing Hawthorne. My heart will never be complete without them; the wound heals, but the scar remains. And I still see them: in the crow presents I find in my path, in the exuberance of our daughter. There is nowhere we will go that I won’t know that some atom of them hasn’t touched. 

It feels like a new year, like the holiday now falls on September 20. Maybe that’s a good thing; it’s the equinox, when the season turns from summer to fall, that midway point between light and dark. It feels fitting that the calendar should reset here. I’m trying to hold less expectations of what this year will bring, and make sure that I am getting what we need to keep on living presently and actively, with a solid dose of what I want as well. 

And on it goes.

Posted in Uncategorized

This Grief Has Gravity, It Pulls Me Down

September. The morning dawns cool; there is a chill on the breeze that wasn’t carried there last week. The sky is still sleepy, reluctant to let go of her blanket of darkness and allow the light to cover her, soft as the pinks and oranges are. It is light enough to see when I first awake, but I sense that will not be the case by week’s end. 

It took years to be able to enjoy fall after my father died. I associated the change of seasons, the natural cycle of trees shedding their leaves with transformations for the worse, and the finality of death. Indeed my mother, incorrect as it was, had blamed the colorful foliage itself for my father’s disease. There was something wrong with the trees, she said; he must have gotten it from raking the leaves. Her logic for this was our dog had a bout of lockjaw, quickly remedied with antibiotics, some time after playing in the giant leaf piles gathered up in the yard. My father was finally damned with ALS that month, after years of incorrect differential diagnoses, including a short while where the doctor suspected tetanus. I judged her harshly for years for this ridiculous conclusion, though not to her face. Now that I’ve lost my own spouse, and son, I understand much more.

I have been raised to believe in science; I was raised Catholic, yes, but never at the expense of scientific reasoning (recovering Catholics, lift your glass [Response: we lift them up to the Lord]). There are scientific reasons, biologic and chemical and physical reasons for both Hawthorne’s and Oscar’s deaths, and my father’s, and literally everyone else’s. But when it is your loss, the science does little to comfort, and is not the answer you are looking for when you keep asking why. 

Why them? Why did I have to lose them? Why did they have to die? 

It has been a year since my wife suddenly and unexpectedly passed out of this world; coincidentally, this week we were finally able to gather and say goodbye to my cousin who died almost exactly six months later. The two shared a particular bond, one born of an understanding of pain the way many of us are fortunate enough not to experience. They traded stories of what they wished they could do, tips and tricks for getting through the harder moments when their bodies refused to answer directions or punish them for movements. They were more than in-laws; they were confidants and brothers in their struggles. Stan guided Hawthorne more than anyone else through the multiple surgeries and treatment options. When Hawthorne disclosed their gender journey, Stan had difficulty understanding but nonetheless accepted; deciding that Hawthorne was too long of a name, he rechristened them Ed, to Hawthorne’s delight. Even as I mourn them both, I am grateful. 

Hawthorne died of an accidental polysubstance overdose. The combination of medications they took, the amounts they were taken, and the addition of alcohol as a means of pain relief caused their breathing to slow, their autonomic nervous system to fail to pick up the pace. Without breath, there is no life, and my beloved slipped away. I had cuddled them and seen their ocean eyes smile after an early morning bath, kissed them and tucked them into bed, only an hour before. 

Night is coming quicker these days. Grief and anger take the dark as their cue to tango, a passionate dance punctuated with sudden strikes in the flow of the movement. I rocked Lucy to sleep, tears streaming and inwardly screaming while lullabies filled the silence. I spent my alone hours of the last evening crying until I finally slept, heart wrenching without pause. As time hurtles forward to the impending anniversary, I can feel depression gather, a kettle of vultures circling closer until the time comes to descend. It baits me, intrusive thoughts of violent death flashing uninvited through my mind. Things I have seen, things I’ve read, and a vivid imagination create horrific scenes that arrive unbidden, threatening to swallow me unless I can find a way out. 

The question why is a constant drumbeat in my blood. Why did they have to die? Why am I left behind, again? These aren’t welcome thoughts, but impertinent intruders. I look at Lucy and think, she needs me. On my worst days, when I can’t seem to function for myself, I can pull it together enough for her. Oscar never had the chance to need me on this side, but I can be here for her. Though it is Hawthorne’s anniversary approaching, one loss feeds the other, and I grieve for our lost son as well. 

People ask how I’m doing. What can I say? Most of the time, things are good. I love my job; it’s challenging and rewarding and an excellent fit; my coworkers are fantastic. Lucy is the brightest light in my life, and she’s thriving at daycare and at home. I have an interactive online social life, which fits, between the pandemic and solo mom life. I’m privileged enough to afford a good apartment, reliable car, food, utilities. I’m writing more than ever, slowly and intentionally losing weight, and reading again. All systems go. 

And yet my patience is thin, my tolerance for bullshit low; I am on edge constantly, primed to react. 

The anger I harbor snaps at her leash; grief drops in, unannounced. My soul is permanently disfigured from the deep wells that loss has carved; it’s these dark depths that part of me longs to curl up in, never to be left again. This is the call of the abyss, and must be met with resistance. 

Over the past year I have structured my new life very deliberately. I have nothing more to unpack; there is a place for everything, and most things are in their place. I don’t often have to search for something, unless Lucy hid it. I go to the pharmacy once a month; the grocery store once per week, buying 80% of the same things as the week before. Target is still my weakness. I try to read, write, and stitch daily, usually picking two of the three. I am learning how much reading goes into writing a novel, and I find it thrilling. 

So much has changed; but so much hasn’t.

I still post on their Facebook page, and tag them in memes. 

I still turn to my right to tell them about my thoughts. 

I still hold my hand out in the car to the passenger seat beside me to be held.

I still reach for them at night. 

I still think of making special breakfast or fancy coffee on weekends, because Hawthorne liked it. I think of making it, but I don’t. 

I don’t listen to a lot of new music.

I don’t watch TV consistently, or almost any movies (that aren’t for Lucy).

I don’t cook much, and some weeks, not at all. 

I don’t feel home.

After so many years where I had felt untethered from a place called home, Hawthorne had become my refuge. Now again, I am unmoored. I can’t settle the same way I once could; there’s a restlessness, a searching. I know I’m still looking for my place. What I don’t know is if I’m still looking for Hawthorne, somewhere in the wind. Where we are now is good, solid ground, and that is going to have to be enough for now. 

It’s said that, while dealing with the loss of a spouse or someone of significant importance, that you shouldn’t make major decisions for a period of time; sometimes six months, or twelve, or three years. Within three months of Hawthorne’s death I had moved states, found a new job, put my daughter in childcare, and changed essentially everything. Conventional, I haven’t been. 

When I step back and look at it, yes, things are going well. The daily routine, the job, the apartment, all the boxes are ticked. In the day to day of things is a different story. It’s still one foot in front of the other; sometimes one day at a time, sometimes an hour. All the good things that have happened, the successes, the reclamations: I’d trade them all to have them back, so we could work through our collective shit, persevere through the hard times, and come back at it together and strong. 

Instead, every day I crawl into bed, utterly exhausted and feeling deeply alone. There’s no one to hold at the dimming of the day, no one to ground me with cold bare feet, no arms to hold me while the tears flow. I know as steadily as I did when I said my vows that they were the only one who could fill that hollow, only the shining optimism is now bitter and tarnished. Year one a widow, in the books. It’s time for chapter next, knowing that I’ll never find a love like that again. Hawthorne broke the mold, reformed it to fit better, and broke it again. How I wish I could pick up the pieces, hold onto something that once held them, instead of walking slowly through this landscape of debris and broken dreams. 

Just one step at a time.

One foot

then the other

for this body is still in motion.

Posted in Uncategorized

Just Some Things That I Will Tell You

The tiles in the bathroom look like an optical illusion. They seem to move, a small and continuous wave, the solid floor undulating in front of me. I know there is a reason for the design, even though looking at it makes me both nauseated and irrationally angry. The corner the wave moves around acts as a barrier, guiding the water from the open shower back down towards the drain so the toilet doesn’t get flooded, so it doesn’t flow out underneath the door. 

I’m in the bathroom at in the pediatric ICU at the floating children’s hospital, exhausted and staring in the bathroom mirror while letting the water run. It’s 9 PM; I’ve been at a hospital with Lucy for fourteen hours. She’d had a cough recently; no fever, not acting different or anything. I have been having trouble with allergies, and since she sounded the same as I did, passed it off as the lovely effects of post-nasal drip. That morning, there was something in the way she was breathing that I didn’t like. She sort of slept in, and when she woke up, she was very cuddly and quiet while I changed her diaper. That’s not my girl, I thought. She seemed like she breathing hard after I’d laid her down to chang her; I lifted her, pressing my ear to her back. I thought I heard wheezing, and the rate of her breaths was too fast for my comfort. I tossed some clothes on her and sat her on the couch while I grabbed a couple diapers and refilled my coffee. We were out the door within five minutes of deciding to go. 

It has been years since I worked as a paramedic and teched a call; I feel like I remember enough to make me a parent than has a strange continuum of “Oh, shit,” to “Nah, you’re fine.” I certainly remember how long kids can compensate, and how quickly they can tank. Something just didn’t feel right about this; I had zero compunction about throwing her in the car for the 10 minutes to the hospital. She needed an ER, I felt, but it wasn’t so imminent that I was going to call an ambulance. 

The emergency room was empty; they had just a few patients overnight. Within an hour, the doctor had seen us and gave a likely diagnosis of bronchiolitis, but they were going to test for Covid, RSV, flu, and get a chest X-ray just to rule out the scarier things. The doctor said she had some concern about a small pneumonia she may have heard, or it may have been noise she was making, and they wanted to take a look. By this point, Lucy is laying quietly in the bed, far more still than I have ever seen her. I may have been hoping for bronchiolitis, but I was not convinced. She became much more animated when it came time to get swabbed; I held her tightly while they tickled her brain for the Covid test. 

They took my tiny kid on the full-size hospital bed to the X-ray. She looked just a little scared, but she charmed everyone who passed by; this brightly dressed, dark-eyed little kid just dwarfed in the white sheets on the big bed. When we got into the room, two techs came to help me try to hold Lucy upright against the hard surface of the X-ray plates. If you have ever tried to wrestle a cat into a costume, or perhaps a wolverine into a bathtub, that’s about how it went. I, the least sympathetic parent when my kid gets shots, came close to crying while holding my child’s arms up in the air, her face pressed against the hard plastic. She screamed throughout, and I tried to comfort myself knowing her lungs were working well enough for that.

Back in the room, a couple nurses came in. Lucy was exhausted from the Great Battle of X-rays, and was just resting in my lap. I hugged her tight and the nurses performed some sort of magic, getting an IV in her arm before she even figured out that she was being  held down again. It took a couple minutes to get her arm wrapped so she couldn’t pull it out, but then, all was quiet again. I pulled out my work computer, packed from the night before for work, and put Youtube videos of puppies on to keep her relaxed and happy. 

The doctor came in, her face showing care with a touch of concern. Lucy not only had pneumonia, but RSV as well. She was negative for both flu and Covid, thankfully, but it was serious enough that they were looking to transfer her to a children’s unit. RSV had been going around, oddly, a breakout in the summer months. Lucy actually happened to be in the ED the day the story was out on NPR. They staff were looking for a bed and we would be transported as soon as that happened. I nodded along; I felt better that she was going to be watched, because her breathing still wasn’t getting better, though it wasn’t getting worse.

Someone brought some graham crackers and milk for her, and she perked up a bit with those. She just never seemed herself; I couldn’t put my finger on it. Tension was slowly rising with every hour passing. Thanks to Covid, I knew visitors were out of the question, and being on my phone meant not paying as close attention as I wanted to her. 

About five hours after showing up at the ER, the ambulance arrived for transport. I was a bit taken aback that she had a full team: medic, EMT, and pediatric nurse. They tucked Lucy into the little adjustable harness used on the stretcher, and I grabbed the bag of stuff my sister had dropped off with triage. Lucy looked happier, but was not as excited as I had hoped to be going in the big truck. Everything about her was so subdued. 

We got to the hospital in Boston, and I realized that the only time Lucy had been in an elevator was when she had been in the NICU in Vermont. She was wide-eyed, watching the doors open and shut. Up on the floor, just as they had on the way to X-ray, the nurses and techs all exclaimed over the tiny cute kiddo on the big stretcher. My throat clutched when they wheeled her up to the doors of her room. 

If you’ve never seen what the hospitals use for beds for kids, there’s a few option, depending on their size. Lucy had been so tiny, she’d stayed in the bassinet style while in the NICU. For this, her bed reminded me of the narrow cribs that held too many kids in orphanages. The bars on the side could slide up and down, with little doors outside them, but with all the rails up it looks like a tiny baby jail, covered by tented, sterile plastic. 

We were right outside the nurses’ station and we had the last room in the inn; we were actually in the pediatric ICU, because that was the quickest available bed. The nurses and doctor were in quickly; I got her changed while they wrapped the pulse oximeter around her big toe, covered her foot a sock, and wrapped that up with tape so she couldn’t get it off. Stickers were changed out for different set for the new cardiac monitor, and we were given the plan: start antibiotics and monitor a bit, possibly the night. 

So that’s what we did. Lucy loved the delicious, medicinal taste of youth, amoxicillin; one day she will marvel at its odd nostalgia for a better time, when it meant that your parent was there making you feel better when you were sick, and maybe they’d make you chicken soup if you took your dose. 

In the chair next to the baby jail, my composure started to crack, very slowly. I felt both alone and watched; like everyone was waiting to see which way this kid would go, whether she’d bounce, or end up needing more significant intervention. And really, they were; she wasn’t able to verbally tell us anything, all we had to go on were what we could see and what the monitor told us, which depended on her stillness. I remember sitting in the NICU, the magnesium still working its way out of my body; the hormones pinging around wildly. I’d watch in terror as the numbers would drop when Lucy wasn’t sure how to eat and breathe at the same time, or sleep and breathe. The NICU experience was as good as such things can be; incredible attentive and compassionate staff, moments of stark fear with long stretches of awe at the “perpetual motion baby” in the bassinette. Hawthorne and I took turns feeding her impossibly small amounts of breastmilk. Hawthorne was there.

It came over me slowly, a rising tide rather than a single hard wave. I wasn’t scared so much as I was angry. Lucy was exactly where she needed to be, in excellent care; safe, with super-qualified people to help her, just like she was in the NICU. But unlike that, I was alone. Hawthorne had been by my side, often quite literally, for the four-week endeavor of bringing Lucy into this world and home. Hawthorne should be here for this. 

I had a moment where I thought, damn, how could I want them here to suffer through this? How selfish am I? 

But you know something? I don’t care if it is selfish. For once in my life, I’m OK with being selfish.

This solo mom thing is hard as shit. Sitting in a hospital with a sick kid as a solo mom, even more so. I didn’t want to be alone. If Hawthorne was still here, I’d have them – to hold on to, to admit when I was scared, to be able to take five minutes to break. I would have been able to run down and get coffee, or use the bathroom without calling a nurse over. I mean, I had help; my sister and her sweetie stepped in so I didn’t have to worry about my car, or the dog, or how to get a change of clothes. They took care of all that, and I’m grateful.

But dammit, Hawthorne should have been there. We had handled so much in our time together; so much death and loss and grief. Family, friends, strangers, patients, coworkers. Lucy was certainly far away from Death’s door, but what happened to “in sickness and in health?” Where the fuck are you for this, H? I couldn’t stop thinking. 

So there I stood, in the PICU patient/family bathroom, watching the tiles undulate in perfect stillness. My body hurt from sitting in uncomfortable chairs all day, usually with 23 lbs of sick cuddly kiddo on my lap. I’d be sleeping on the same chair, pulled out flat. Where are you for this?

Lucy slept poorly, but her oxygen never dipped low enough to alarm. I was awake every half hour or so, watching her breathe. Where were you to sit awake with me for hours, eyes trained on the minute rise and fall of our baby’s back?

By the time she woke up, Lucy was already on the mend. The night had been the peak, it seemed; by the time she eagerly took her third dose of antibiotics, she was much closer to herself. I got a video of her popping up in the crib, laughing, and looking over the bars. That’s what had been missing.; her laughter. I think it’s the only day I’ve known without it since she started. Where were you to offer me your handkerchief for the tears of relief that welled up? 

We were discharged a few hours later, after Lucy was literally running around the room, the cords for the heart monitor and pulse oximeter trailing behind her. 9 more days of the antibiotics, some extra rest this weekend and Monday off, and she’d be right as rain. 

By the time I post next, it will have been a full year since they died. Everything continues to change, both that which we expect and that we don’t. We have moved across state lines in a pandemic, starting a new job and daycare and meeting new people. We have a new political administration; there are vaccines and variants, new Olympians and catastrophic storms. Where were you for that?

Summer is loosening her grip as the scent of cinnamon begins to overtake the entrance to the grocery store. Grief is still my familiar; anger isn’t as distant as I had thought, but comes and goes without so much as an acknowledgment of their whereabouts. I watch the city skyline grow small in my sister’s rearview mirror as she takes us home. My eyes are closing against the overwhelming sun, and before I doze off, again I think, they should have been here.